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Thank you for deciding to join the Be The Match Registry^®. You are taking the first step to give hope to thousands of patients who need a donor to make their transplant possible.

Before you begin your online registration, please read the terms of use. Please also read the Donor Registration and Consent for HLA Typing below. This explains exactly what you are agreeing to when you join the registry.

Existing Members – Sign in here.

The National Marrow Donor Program^® (NMDP) is entrusted to operate the federally authorized C.W. Bill Young Cell Transplantation Program, including the Be The Match Registry.

*I have read and understand the Terms of Use for my application to join the registry, which includes providing accurate information in the questionnaire.

I Agree I Disagree

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I.  INVITATION AND PURPOSE
You are invited to participate in the Be The Match Registry®. The National Marrow Donor Program® (NMDP) is entrusted to operate the federally authorized C.W. Bill Young Cell Transplantation Program, including Be The Match Registry. The registry is administered by the NMDP under a federal contract. The NMDP was established in 1986. Its primary goal is to identify unrelated donors for patients in need of a blood stem cell transplant but who have no family member who is a suitable tissue match. We ask you to read this form and ask any questions you may have before agreeing to enroll as a potential blood stem cell donor (potential donor).

The NMDP works with hospitals that treat patients with life-threatening blood diseases that can be treated with a blood stem cell transplant. When a volunteer registers as a potential donor, his/her tissue type is listed on the donor file and is compared with the tissue type of patients in need of a transplant. If you are identified as a possible donor for a patient, additional testing would be required to determine if your tissue type matches the patient’s closely enough for a transplant. If you are determined to be the best available match for a patient, you may be asked to donate blood stem cells.

By completing the NMDP Donor Registration form online and selecting the "I agree" button associated with this text, you are registering as a potential donor. You are also giving the NMDP permission to collect, retain and use your personal identifying information and your contact information, and to share this information with NMDP donor centers. Likewise, you are giving the NMDP and Be The Match Foundation® permission to exchange between them your contact information and any updates to your contact information. You are further giving the NMDP permission to collect a blood sample or swab of your cheek cells. You are also giving the NMDP permission to determine your tissue type, to store your sample for as long as you remain registered, and to conduct further testing of your stored sample to determine if you match a searching patient.

Blood stem cells grow into mature blood cells and can be collected from either the bone marrow or the blood stream. (See www.BeTheMatch.org/join.) The chance that you will be selected to donate blood stem cells depends on your tissue type. Since the beginning of the NMDP, about one potential donor in 200 listed on the donor file has donated. It is important for you to know that if you are selected as a donor, blood stem cell donation may require 30 to 40 hours of your time over a four to six week period.

II. PROCEDURES FOR PARTICIPATING IN THE REGISTRY THROUGH THE NMDP
If you want to be a potential donor, you will be asked to answer a series of questions regarding your health. These questions are similar to the questions asked of blood donors. They are designed to protect you, as well as to ensure that it would be safe to use your blood stem cells for transplant.

After answering the health questions, agreeing to the consent language online, and providing your personal contact information, your eligibility will be determined. If you are still suitable, you will be asked to either give 10 mL (2 teaspoons) of blood drawn from a vein in your arm, a few drops of blood from a finger stick, or a collection of cheek cells from inside your mouth using a cotton-tipped swab.  Donors registering online will be asked to give a cheek cell sample. Some of your sample will be sent to a laboratory for tissue typing (HLA typing). 

You may be asked to contribute all or a portion of the cost for your initial tissue typing. Your tissue type will be included on the list of potential donors.

Any sample not used for initial tissue typing may be stored for future testing to determine if you match a searching patient. If you are identified as a potential tissue match for a patient, additional testing may be needed. If possible, stored samples will be used for this testing, however, you may be asked to provide a fresh blood sample.

III. POSSIBLE RISKS AND BENEFITS OF REGISTERING AS A POTENTIAL DONOR
If a blood sample is requested to join the registry, you should know there is minimal risk associated with the blood draw. You may experience bruising around the site of the blood draw, infection at the puncture site, or more rarely, fainting.

Registering as a potential donor is not expected to benefit you directly in any way. If you donate blood stem cells for a patient, the patient may benefit from the transplant.  At each step in the process, you will be given more information and the opportunity to continue or to stop.

IV. REQUIREMENTS FOR YOUR CONTINUED PARTICIPATION
Your participation continues until you pass the maximum age limitation (which currently is 61 years old), until you withdraw, or until it is determined that you cannot be located, whichever comes first. The NMDP expects that you will keep the NMDP or the donor center informed of changes in your contact information (for example, changes in name, address, phone, etc.). If your health changes after you join, it's possible you may no longer be able to donate blood stem cells. If you experience any changes in your long-term health, you should notify your donor center or the NMDP. 

V.  VOLUNTARY PARTICIPATION AND WITHDRAWAL
If you decide to join the Be The Match Registry as a potential donor, you are free to withdraw at any time. If you withdraw, your tissue type will no longer be available for searching patients, and if you have a sample stored, it will be destroyed. No matter what you decide, now or in the future, your decision will not affect your ability to use the services of the registry or the NMDP, if needed.

VI. SAFETY
The only physical risk associated with registering as a potential donor is providing the blood sample for tissue typing. The risks associated with the blood draw are slight. If an injury does occur, treatment will be available, including first aid, emergency treatment and further care as needed.

VII. REIMBURSEMENT AND COSTS TO YOU
You will not be paid for participating as a potential donor and, if you donate blood stem cells, you will not be paid for the donation. (You may be asked to contribute toward the cost of your initial tissue typing and, if so, will be told of this in advance of the swab of cheek cells or blood draw procedure.) You will not be charged for any expenses resulting from further testing to identify you as the best available donor or for the collection of your blood stem cells.

VIII. CONFIDENTIALITY
The NMDP and the donor center have procedures in place to keep each potential donor's personal information and donor status private and confidential. Your tissue type and sample stored by the NMDP will be identified by a code and will be stored separately from the personal identifying information that you provide when registering to be a potential donor. Your personal identifying information will be disclosed only for purposes identified in this consent form or for purposes related to the operation of the federally authorized C.W. Bill Young Cell Transplantation Program in compliance with the requirements of the federal Privacy Act. Your personal identifying information will not be disclosed to transplant centers. If you are selected as a potential matching donor for a searching patient, your personal identifying information and contact information will be used in attempting to locate you.

You may be periodically contacted by the NMDP and Be The Match Foundation in an effort to keep your address information current, to provide you with program updates, and to share opportunities for involvement through, among other things, volunteering, donating money and advocating for our cause.

IX. POTENTIAL ADDITIONAL REQUESTS
As a volunteer donor, you may be contacted about donating other types of blood products, such as whole blood or white blood cells for a patient, or asked if you would like to participate in a research project. If you are contacted for one of these types of requests, you would be given more information and asked to sign another consent form. You are free to say no to any of these requests.

X.  QUESTIONS OR CONCERNS
If you have questions or concerns about participating as a potential donor, please contact the NMDP Donor Resources Department at 1-800-526-7809. You will be given a copy of the consent language for your records.

XI.  DONOR STATEMENT OF CONSENT
By selecting the "I agree" button associated with this text, I am indicating that:
• I have read this form and consent to its terms.
• I have read the educational materials provided.
• I have been given the chance to ask questions.
• I have given correct and complete contact information.
• I consent to have a sample collected.
• I consent to have my sample tissue typed and listed on the Be The Match Registry and with the NMDP.
• I consent to have my sample stored by the NMDP to be available for the Be The Match Registry purposes and for possible future testing to determine if I match a searching patient.

*I have read and understand the Donor Registration and Consent for HLA Typing and agree to its terms.

I Agree I Disagree

By entering my full name (First Middle Last) into the field below, I acknowledge that I have read, understand and agree with the above. I understand that my typewritten name in this field constitutes my electronic signature which is equivalent to my legal handwritten signature.

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